Symposium Agenda
3rd International Rare Neuroimmunologic Disorders Symposium
Clinical Program
| Wednesday July 16, 2008 |
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| 4:00 - 6:00 pm |
Onsite Registration |
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| 6:00 - 6:30 pm |
Welcome Remarks
Douglas A. Kerr, MD, PhD, Johns Hopkins University
Sanford Siegel, PhD, Transverse Myelitis Association |
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| 6:30 - 7:30 pm |
RNDS Inaugural Presentation and Keynote
Allen Rucker, Author ‘The Best Seat in the House’ |
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| Thursday, July 17, 2008 |
| Morning Session |
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| 7:00 - 9:00 |
Registration and Continental Breakfast
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| 9:00 - 9:15 |
Introduction
Peter A. Calabresi, MD and Douglas A. Kerr, MD, PhD
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| 9:15 - 9:45 |
Neuroimmunologic Disorders: An Overview
Benjamin M. Greenberg, MD, MHS
Johns Hopkins University, Baltimore, MD
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| 9:45 - 10:15 |
Brain, Spinal Cord and Cells: The Actors and The Movie
A Neuro-primer for Non-Neurologists
Carlos A. Pardo, MD
Johns Hopkins University, Baltimore, MD
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| 10:15 - 10:45 |
Understanding the Immunopathology of Central Nervous System Diseases
Peter Calabresi, MD
Johns Hopkins University, Baltimore, MD
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| 10:45 - 11:00 |
Refreshment Break
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| 11:00 - 11:30 |
Acute Disseminated Encephalomyelitis (ADEM)
Benjamin Greenberg, MD, MHS
Johns Hopkins University, Baltimore, MD
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| 11:30 - 12:00 |
Multiple Sclerosis (MS)
James Bowen, MD
MS Center at Evergreen, Kirkland, WA
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| 12:00 - 1:00 |
Lunch
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Afternoon Session
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| 1:00 - 1:30 |
Neuromyelitis Optica (NMO) or Devic’s Disease
Brian Weinshenker, MD
Mayo Clinic
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| 1:30 - 2:00 |
Transverse Myelitis (TM)
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
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| 2:00 - 2:30 |
Pediatric Transverse Myelitis
Frank Pidcock, MD
Kennedy Krieger Institute, Baltimore, MD
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| 2:30 - 3:00 |
Pediatric TM as different from CIDP, and pediatric ADEM
Gregory Barnes, MD/PhD
Vanderbilt University, TN
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| 3:00 - 3:30 |
Neurosarcoidosis
Carlos Pardo, MD
Johns Hopkins University, Baltimore, MD
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| 3:30 - 3:45 |
Refreshment Break
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| 3:45 - 4:15 |
Neurological manifestations of lupus and other systemic rheumatologic disorders
Julius Birnbaum, MD
Johns Hopkins University, Baltimore, MD
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| 4:15 - 4:45 |
Principles of Rehabilitation – Overview
Barbara J. de Lateur, MD
Johns Hopkins University, Baltimore, MD
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| 4:45 - 5:30 |
The auto-immune epidemic: Bodies gone haywire in a world out of balance and the cutting edge science that promises Hope
Author: Donna Jackson Nakazawa
Panel Discussion and Q&A
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| Friday, July 18, 2008 |
Morning Session
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| 7:30 - 9:00 |
Continental Breakfast
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| 9:00 - 9:30 |
Acute Therapies in Demyelinating Diseases
Benjamin Greenberg, MD
Johns Hopkins University, Baltimore, MD
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| 9:30 - 10:00 |
Choosing a Treatment for New Diagnosis of Multiple Sclerosis
Kathleen M. Costello, M.S., C.R.N.P., M.R.C.P. (UK), M.S.C.N
University of Maryland Medical Center, Baltimore, MD
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| 10:00 – 10:30 |
Future Immunotherapies and Neuroprotective therapies
Peter Calabresi, MD
Johns Hopkins University, Baltimore, MD
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| 10:30 - 10:45 |
Refreshment Break
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| 10:45 - 11:15 |
Fatigue in MS, TM and related disorders
Kathleen M. Costello, M.S., C.R.N.P., M.R.C.P. (UK), M.S.C.N
University of Maryland Medical Center, Baltimore, MD
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| 11:15 - 12:00 |
Depression and Cognitive Dysfunction
Adam I. Kaplin, MD, PhD
Johns Hopkins University, Baltimore, MD
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| 12:00 - 1:00 |
Lunch
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Afternoon Session
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| 1:00 - 1:30 |
Medical and interventional approaches to Neuropathic Pain and Paresthesias
Denise Taylor, MD
University of New Mexico, Albuquerque, NM
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| 1:30 - 2:00 |
Autonomic Dysfunction and Management
Claire C. Yang, MD
University of Washington, Seattle, WA
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| 2:00 - 2:30 |
Sexual Dysfunction
Bobbie Severson, ARNP
MS Center at Evergreen, Kirkland, WA.
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| 2:30 - 3:00 |
Spasticity Management
Frank Pidcock, MD
Kennedy Krieger Institute, Baltimore, MD
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| 3:00 - 3:30 |
Patient Centered Care: The Role of Self-management
Stephen Wegener, PhD
Johns Hopkins University, Baltimore, MD
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| 3:30 - 3:45 |
Refreshment Break
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| 3:45 - 4:15 |
Self advocacy and employment with disabilities
Sandy Hanebrink, OTR/L
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| 4:15 - 4:45 |
Support for Women during Pregnancy and Preconception
Donna Chattin, BSN, RN
Benjamin M. Greenberg, MD, MHS
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| 5:00 - 6:30 |
Workshop Sessions
Workshops will be rotated twice
Session 1 – 5:00 – 5:40 pm
Session 2 – 5:50 – 6:30 pm
| A. |
Adjusting to the disease: pitfalls, precautions and
pleasures for patients and their caregivers.
Adam I. Kaplin, MD, PhD
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| B. |
Obstetric issues and autoimmune disorders
Donna Chattin, BSN, RN
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| C. |
Spasticity
Frank Pidcock, MD
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| D. |
Pain Management
Denise Taylor, MD
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| E. |
Complementary and Alternative therapies AND Equine therapy
Pat Kennedy, RN, CNP
Moira Baynes, RN
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| F. |
Positive Growth in the Face of Adversity
Stephen Wegener, PhD
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| G. |
Self advocacy: navigating government and community support programs
Sandy Hanebrink, OTR/L
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| Saturday, July 19, 2008 |
Morning Session
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| 7:30 - 9:00 |
Continental Breakfast
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| 9:00 - 9:30 |
Genetics and Autoimmunity
Leslie A. Morrison, MD
University of New Mexico, Albuquerque, NM
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| 9:30 - 10:00 |
Imaging and Gait analysis
Kathleen M. Zackowski, PhD, OT
Kennedy Krieger Institute, Baltimore, MD
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| 10:00 - 10:30 |
High Dose Cyclophosphamide in Multiple Sclerosis
Chitra Krishnan, MHS
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
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| 10:30 - 10:45 |
Refreshment Break
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| 10:45 - 11:15 |
Hematopoietic Stem Cell Transplantation in Multiple Sclerosis
James Bowen, MD
MS Center at Evergreen, Kirkland, WA.
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| 11:15 - 11:45 |
Optical Coherence Tomography (OCT) and neuroprotection
Laura J. Balcer, MD
University of Pennsylvania, Philadelphia, PA
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| 12:00 - 1:00 |
Lunch
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| 1:00 - 1:30 |
Neurorestorative Princples of Rehabilitation
John W. McDonald, III, MD, PhD
Kennedy Krieger Institute, Baltimore, MD
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| 1:30 - 2:00 |
Neurodegeneration and Neuroregeneration – The Future
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
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| 2:00 - 4:00 |
A Moderated Discussion
Sanford J. Siegel, PhD, President TMA
Chitra Krishnan, MHS, Johns Hopkins University
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| 6:00 - 9:00 |
Dinner and Keynote
Presentation of TMA Distinguished Service Award
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