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Symposium Agenda

3rd International Rare Neuroimmunologic Disorders Symposium

Clinical Program

Wednesday July 16, 2008
   
4:00 - 6:00 pm Onsite Registration
   
6:00 - 6:30 pm Welcome Remarks
Douglas A. Kerr, MD, PhD, Johns Hopkins University
Sanford Siegel, PhD, Transverse Myelitis Association
   
6:30 - 7:30 pm RNDS Inaugural Presentation and Keynote
Allen Rucker, Author ‘The Best Seat in the House’
   
Thursday, July 17, 2008
Morning Session  
   
7:00 - 9:00 Registration and Continental Breakfast
 
9:00 - 9:15 Introduction
Peter A. Calabresi, MD and Douglas A. Kerr, MD, PhD
 
9:15 - 9:45 Neuroimmunologic Disorders: An Overview
Benjamin M. Greenberg, MD, MHS
Johns Hopkins University, Baltimore, MD
 
9:45 - 10:15 Brain, Spinal Cord and Cells: The Actors and The Movie
A Neuro-primer for Non-Neurologists
Carlos A. Pardo, MD
Johns Hopkins University, Baltimore, MD
 
10:15 - 10:45 Understanding the Immunopathology of Central Nervous System Diseases
Peter Calabresi, MD
Johns Hopkins University, Baltimore, MD
 
10:45 - 11:00 Refreshment Break
 
11:00 - 11:30 Acute Disseminated Encephalomyelitis (ADEM)
Benjamin Greenberg, MD, MHS
Johns Hopkins University, Baltimore, MD
 
11:30 - 12:00 Multiple Sclerosis (MS)
James Bowen, MD
MS Center at Evergreen, Kirkland, WA
 
12:00 - 1:00 Lunch
 
Afternoon Session
 
 
1:00 - 1:30 Neuromyelitis Optica (NMO) or Devic’s Disease
Brian Weinshenker, MD
Mayo Clinic
 
1:30 - 2:00 Transverse Myelitis (TM)
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
 
2:00 - 2:30 Pediatric Transverse Myelitis
Frank Pidcock, MD
Kennedy Krieger Institute, Baltimore, MD
 
2:30 - 3:00 Pediatric TM as different from CIDP, and pediatric ADEM
Gregory Barnes, MD/PhD
Vanderbilt University, TN
 
3:00 - 3:30 Neurosarcoidosis
Carlos Pardo, MD
Johns Hopkins University, Baltimore, MD
 
3:30 - 3:45 Refreshment Break
 
3:45 - 4:15 Neurological manifestations of lupus and other systemic rheumatologic disorders
Julius Birnbaum, MD
Johns Hopkins University, Baltimore, MD
 
4:15 - 4:45 Principles of Rehabilitation – Overview
Barbara J. de Lateur, MD
Johns Hopkins University, Baltimore, MD
 
4:45 - 5:30 The auto-immune epidemic: Bodies gone haywire in a world out of balance and the cutting edge science that promises Hope
Author: Donna Jackson Nakazawa
Panel Discussion and Q&A
 
Friday, July 18, 2008
Morning Session
 
 
7:30 - 9:00 Continental Breakfast
 
9:00 - 9:30 Acute Therapies in Demyelinating Diseases
Benjamin Greenberg, MD
Johns Hopkins University, Baltimore, MD
 
9:30 - 10:00 Choosing a Treatment for New Diagnosis of Multiple Sclerosis
Kathleen M. Costello, M.S., C.R.N.P., M.R.C.P. (UK), M.S.C.N
University of Maryland Medical Center, Baltimore, MD
 
10:00 – 10:30 Future Immunotherapies and Neuroprotective therapies
Peter Calabresi, MD
Johns Hopkins University, Baltimore, MD
 
10:30 - 10:45 Refreshment Break
 
10:45 - 11:15 Fatigue in MS, TM and related disorders
Kathleen M. Costello, M.S., C.R.N.P., M.R.C.P. (UK), M.S.C.N
University of Maryland Medical Center, Baltimore, MD
 
11:15 - 12:00 Depression and Cognitive Dysfunction
Adam I. Kaplin, MD, PhD
Johns Hopkins University, Baltimore, MD
 
12:00 - 1:00 Lunch
 
Afternoon Session
 
 
1:00 - 1:30 Medical and interventional approaches to Neuropathic Pain and Paresthesias
Denise Taylor, MD
University of New Mexico, Albuquerque, NM
 
1:30 - 2:00 Autonomic Dysfunction and Management
Claire C. Yang, MD
University of Washington, Seattle, WA
 
2:00 - 2:30 Sexual Dysfunction
Bobbie Severson, ARNP
MS Center at Evergreen, Kirkland, WA.
 
2:30 - 3:00 Spasticity Management
Frank Pidcock, MD
Kennedy Krieger Institute, Baltimore, MD
 
3:00 - 3:30 Patient Centered Care: The Role of Self-management
Stephen Wegener, PhD
Johns Hopkins University, Baltimore, MD
 
3:30 - 3:45 Refreshment Break
 
3:45 - 4:15 Self advocacy and employment with disabilities
Sandy Hanebrink, OTR/L
 
4:15 - 4:45 Support for Women during Pregnancy and Preconception
Donna Chattin, BSN, RN
Benjamin M. Greenberg, MD, MHS
 
5:00 - 6:30 Workshop Sessions
Workshops will be rotated twice
Session 1 – 5:00 – 5:40 pm
Session 2 – 5:50 – 6:30 pm
 
A. Adjusting to the disease:  pitfalls, precautions and 
pleasures for patients and their caregivers.

Adam I. Kaplin, MD, PhD
 
B. Obstetric issues and autoimmune disorders
Donna Chattin, BSN, RN
 
C. Spasticity
Frank Pidcock, MD
 
D. Pain Management
Denise Taylor, MD
 
E. Complementary and Alternative therapies AND Equine therapy
Pat Kennedy, RN, CNP
Moira Baynes, RN
 
F. Positive Growth in the Face of Adversity
Stephen Wegener, PhD
 
G. Self advocacy: navigating government and community support programs
Sandy Hanebrink, OTR/L
 

 
Saturday, July 19, 2008
Morning Session
 
 
7:30 - 9:00 Continental Breakfast
 
9:00 - 9:30 Genetics and Autoimmunity
Leslie A. Morrison, MD
University of New Mexico, Albuquerque, NM
 
9:30 - 10:00 Imaging and Gait analysis
Kathleen M. Zackowski, PhD, OT
Kennedy Krieger Institute, Baltimore, MD
 
10:00 - 10:30 High Dose Cyclophosphamide in Multiple Sclerosis
Chitra Krishnan, MHS
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
 
10:30 - 10:45 Refreshment Break
 
10:45 - 11:15 Hematopoietic Stem Cell Transplantation in Multiple Sclerosis
James Bowen, MD
MS Center at Evergreen, Kirkland, WA.
 
11:15 - 11:45 Optical Coherence Tomography (OCT) and neuroprotection
Laura J. Balcer, MD
University of Pennsylvania, Philadelphia, PA
                                     
12:00 - 1:00 Lunch
 
1:00 - 1:30 Neurorestorative Princples of Rehabilitation
John W. McDonald, III, MD, PhD
Kennedy Krieger Institute, Baltimore, MD
 

1:30 - 2:00 Neurodegeneration and Neuroregeneration – The Future
Douglas A. Kerr, MD, PhD
Johns Hopkins University, Baltimore, MD
 
2:00 - 4:00 A Moderated Discussion
Sanford J. Siegel, PhD, President TMA
Chitra Krishnan, MHS, Johns Hopkins University
 
6:00 - 9:00 Dinner and Keynote
Presentation of TMA Distinguished Service Award